Amanda's story

January 30, 2018

Hi, my name is Amanda and I am 33 years old, I was diagnosed with Ovarian Cancer in 2017 at 32 years of age. 


My story starts in August 2017 when I had surgery for Crohn’s, all went well although the surgeons mentioned briefly that I had cysts on my ovaries however they drained them during surgery and I didn’t bother to think or worry about it again. It was four weeks post-surgery when I was starting to get ready to go back to work when I started to feel sick, I couldn’t keep any food or water down and my stomach had swollen so much. Back to hospital I went where firstly they drained nearly one litre of fluid from my pelvic area and I was sent home, less than a week later I was back in hospital with the same problems. This time they told me I needed more surgery immediately and there could be a possibility of losing my ovaries, this is when I pretty much lost it and felt like my world was crumbling around me, the last thing I said well actually begged to the surgeon was please don’t take my ovaries.


They couldn’t save my ovaries!!  Apparently, they were so bad they didn’t even resemble ovarian tissue. Two weeks after this on a Thursday morning my husband and I went into the gynaecologist appointment thinking we would be chatting about medication I would need instead we got the news no one wants to hear “it’s cancer”, Ovarian Endometrioid adenocarcinoma. My gynaecologist had said she was so happy that I had Crohn’s as it meant my ovarian cancer was picked up early which usually doesn’t happen for OC and considering mine is quite a rare type and how quickly it started to invade my body, I was really lucky that they got it when they did.


For the next month I hardly slept it was such a struggle to do anything it’s the most strangest numbing feeling and you just don’t know what to do. My cancer story is still happening I am currently half way through chemotherapy. Looking forward to being cancer free and learning to live a new different life. We had been wanting to have children and have cried many a night over the fact that the normal way for that to happen won’t be for us which is extremely difficult to process if not some days impossible, this is by far the hardest struggle for me to fight a feeling of not being “normal” of not being able to have my own children it will get easier but I know it will play on my heart for life. 


Looking back, I had symptoms of ovarian cancer but like a lot of people I ignored them and thought if it keeps happening I’ll go to the doctor. I was just preoccupied with my upcoming surgery that I ignored them. Please don’t ignore new symptoms I could be in a different position now if I had paid more attention to mine.

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